Stress, Anxiety, Depression and Burden in caregivers of Beta thalassemia Major
European Journal of Molecular & Clinical Medicine,
2022, Volume 9, Issue 6, Pages 1000-1006
AbstractBackground: Thalassemia is haemoglobinopathy characterized by a decrease or an absence of synthesis of synthesis of normal globin chains. The disease itself has high morbidity and mortality which is augmented by the high frequency of treatment. The complexity of the problem in patients with thalassemia is related not only to biological aspects but also to psychological, social and spiritual aspects both in patients and their caregivers.
Objectives: This study was conducted to determine the Stress, Anxiety, Depression and Burden in caregivers of Beta thalassemia Major
Materials and methods: The study was conducted in OPD and day-care center for thalassemia patients of Guru Nanak Dev Hospital Amritsar. Fifty Caregivers of children with Thalassemia Major were interviewedThree proformas were used. One for general information (Socio Demographic Performa), and the others were the DASS-21 and the Zarit Burden Interview scale.
Conclusion: Patients with Beta Thalassemia Major expose to intensive and serious medical therapies and their complications lifelong. Thus, psychological status of these patients has important effects on their caregivers. It leads an increase in the frequency of depression and anxiety in both patients and their caregivers. This increase results in negative effects on physical and mental health and increases burden on their caregivers
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